Welcoming 2018 at the CERTAIN Patient Advisory Network

Screenshot of INSPIRE Research Portal homepage
INSPIRE Research Portal

Wow! A blink and already it is a New Year! 2017 was another busy year for the CERTAIN Patient Advisory Network. In May, we launched INSPIREResearch.org. This web portal, developed as part of our PCORI funded project, provides access to publically available resources and tools that support patient-researcher collaborations. Over 1,000 people have visited the site since May – we are excited to see it gain traction and grow among the community!

In June, we joined forces with the University of Washington Institute for Translational Health Sciences (ITHS), one of 60 Clinical and Translational Science Award sites funded by the NIH. The ITHS promotes the translation of scientific discovery to practice by fostering innovative and community engaged research. This collaboration will allow the CERTAIN Patient Advisory Network to support regional efforts to build patient-researcher partnerships through training and networking.

Finally, we announced our first recipient of the Mary’s Fund Award, Patient Advisor Brian Do this past October. The funds will support Brian’s work on the mPOWEr project. We look forward to following his progress and work in 2018!

We are excited to kick-off 2018 with a CERTAIN Patient Advisor Network Steering Committee meeting to shape our plans for the year ahead. This includes continued work on our PCORI project focused on evidence gaps for incorporating patient-generated health data (think mHealth) into health care delivery. In addition, you will start hearing more about a new project, “The Endometrial Cancer Action Network for African-Americans (ECANA)” led by Dr. Kemi Doll. Kemi is committed to improving the healthcare black women receive. She is building partnerships with amazing organizations including Cierra Sisters; Color of Teal, Inc.; and the Society of Gynecologic Oncology to create a sustainable platform and framework for patient-centered outcomes research responsive to the needs of African-American women. I am inspired by this work – ensuring all voices are represented in research is critical, and efforts such as this will pave the way.

So much to be excited for in 2018!

Sincerely,
Danielle Lavallee
Danielle Lavallee
Director, CERTAIN Patient Advisory Network

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Author: CERTAIN Patient Advisory Network

The CERTAIN Patient Advisory Network seeks to improve research by providing a way for patients to work in collaboration with researchers throughout the research process — from the identification of research questions to the communication of the results.

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