Closing out 2018; looking ahead to 2019

Dear Patient Advisory Network members,

It is hard to believe we’re coming to the end of another year – 2018 went by in a flash! Our team has experienced some big changes this year. Sarah and her husband welcomed their first child in January, and Danielle and her family moved across the border to British Columbia, Canada, in August.  Through all of these personal changes, we also managed to accomplish some great things with the Patient Advisory Network!

This year, we began working with the PCORI Engagement Awards team under the PCORI IDIQ mechanism to catalog resources produced by funded engagement awards, as well as make recommendations for how those resources can be made publicly available, to facilitate sharing of knowledge and experience across the community.

ECANA logoIn September, we awarded the second annual Mary’s Fund award to the Endometrial Cancer Action Network for African-Americans (ECANA) team. These funds will support patient partner attendance at the first ECANA Conference, where attendees will learn how to be peer educators, ambassadors, and advocates in their community and work together with researchers and clinicians to identify research priorities for endometrial cancer among black women.

The new year is shaping up to be an exciting one for the Patient Advisory Network – we will be taking part in two new large pragmatic clinical trials, one in bladder cancer (CISTO) and the other in diverticulitis (COSMID). You can read more about both of these new projects in our most recent newsletter. We will also be launching an update to the INSPIRE Research Portal in early 2019, so stay tuned!

We feel so fortunate to have amazing friends and colleagues as part of our Network to further the work of patient engagement in research. We hope to see you in 2019!

Sincerely,

Danielle Lavallee
Director, Patient Advisory Network

Sarah Lawrence
Assistant Director, Patient Advisory Network

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Author: CERTAIN Patient Advisory Network

The CERTAIN Patient Advisory Network seeks to improve research by providing a way for patients to work in collaboration with researchers throughout the research process — from the identification of research questions to the communication of the results.

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