CERTAIN Patient Advisor Engagement Experience: Putting Care at the Center Conference

The Patient Advisory Network often writes letters of support or nomination for Patient Partners and Advisors to attend opportunities for further engagement, training, or education in healthcare and research-related areas of interest. We enjoy supporting our partners’ involvement in these activities as well as learning from their experiences. In early December, Patient Advisory Network Executive Steering Committee member Janice Tufte attended the Putting Care at the Center conference, sponsored by the National Center for Complex Health and Social Needs, in Chicago. Janice attended the conference as a Consumer Scholar, after being nominated for attendance by the CERTAIN Patient Advisory Network. Below is an account of her experience.

The National Center for Complex Health and Social Needs is the only organization that hosts a complex care conference in the US. Putting Care at the Center 2018 was the third annual conference of the National Center for Complex Health and Social Needs. The theme of this year’s conference was Complex Care, Today and Tomorrow. The conference explored complex care models that have been developed across the country and identified directions for future innovation.

Janice 2
Janice Tufte

There were plenty of opportunities to hear from experts in diverse fields under the domain of complex care. The plenaries kept my attention and interest throughout their conversation, and I found particular workshops enlightening and certainly informational. Internationally recognized caregiver expert Ai Jen Poo presented the last day and shared with us consumer scholars in a private meeting after her presentation. We had one on one time with her to hear more about the Caring Across Generations organization and her answers to our questions on intricacies and delivery of complex care.

The workshops I attended were beneficial, particular to my interest area. One was on how to implement innovative health programs in jails, and another was on food insecurity and how to get nutritious foods to individuals who will benefit from fresh fruits and vegetables and other sometimes hard to acquire healthy foods, by offering these healthy foods at hospitals and clinics. I attended one Research Partnership workshop where I learned about study designs incorporating mixed methodologies, including how to best gather data and tell the story of individuals with complex care in a way that is both meaningful and beneficial to the individuals impacted by studies.

More information about the National Center for Complex Health and Social Needs and the Putting Care at the Center conference at https://www.centering.care.

Author: CERTAIN Patient Advisory Network

The CERTAIN Patient Advisory Network seeks to improve research by providing a way for patients to work in collaboration with researchers throughout the research process — from the identification of research questions to the communication of the results.

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